Isabel Jordan is one of the founding members of the Rare Disease Foundation. 13 years into the journey of parenting 2 children, 1 with a rare disease, has taught her many lessons – one of the biggest is that building community can provide care, support, resources and answers.  Connecting with other parents and health care providers has made her a strong proponent of patient advocacy and family and patient led care. Currently, Isabel is the Chair of the BOD of the Rare Disease Foundation and she facilitates the Vancouver Parent 2 Parent Resource Network and coordinates the growth of the Resource Networks across Canada.